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Data/Research

Useful data and research on epilepsy for health and care professionals.

Data/Research

  • Epilepsy Research UK

    Organisation: Epilepsy Research UK
    Type: Website
    Date published: Regularly updated
    Description: Epilepsy Research UK is a charity dedicated to driving and enabling research into epilepsy.

  • Epilepsy12 National Organisational Audit Report 2018

    Organisation: National Clinical Audit of Seizures and Epilepsies for Children and Young People
    Type: Audit/Statistics
    Date published: April 2018
    Description: The Epilepsy12 audit (National Clinical Audit of Seizures and Epilepsies for Children and Young People) uses data collected from hospitals and clinics to support quality improvement in paediatric epilepsy services

  • Neurological Focus Pack Tool

    Organisation: Public Health England
    Type: Data tool
    Date published: 2016
    Description: Data on epilepsy prevalence, mortality rate, risk, hospital stays and more

  • SUDEP research updates

    Organisation: SUDEP Action
    Type: Research
    Date published: April 2023
    Description: SUDEP Action regularly update their web pages with recent research into epilepsy. Visit this website for recent international publications.

  • Training nurses in a competency framework to support adults with epilepsy and intellectual disability: the EpAID cluster RCT

    Organisation: NHS England
    Type: Research study
    Date published: August 2019
    Description: An economic analysis to determine if learning disability nurses, using a competency framework intervention for the management of epilepsy in adults with learning disabilities, can cost-effectively improve clinical and quality-of-life outcomes when compared with treatment as usual

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